T1D Misdiagnosis

Understanding common queries and exclusive information about diabetes of any type.

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T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Early Detection of Type 1 Diabetes: Mom Uses T1D Scout to Screen Her Children at Home

Erin Poche

March 30, 2026

Erin Poche

April 6, 2026

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

From Diagnosis to Global Leadership: A Conversation with Kyle J. Rose

Erin Poche

March 2, 2026

Erin Poche

March 2, 2026

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Laughing to Keep from Dying: Phyllisa Deroze’s Advocacy for the Black Diabetes Community

Lucía Feito Allonca

March 1, 2026

Lucía Feito Allonca

March 2, 2026

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

James Elliott’s Story—and Why His Voice Led Us to Co-Found Voices in Action

Lucía Feito Allonca

January 5, 2026

Lucía Feito Allonca

January 5, 2026

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

When the Signs Don’t Add Up: Misdiagnosed at 60

Julia Flaherty

December 14, 2025

Julia Flaherty

December 22, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

The Impact of Sylvie Maalouf’s Missed Diagnosis on Global Diabetes Care

Lucía Feito Allonca

December 1, 2025

Lucía Feito Allonca

March 16, 2026

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed for 14 Years with Gestational Diabetes & Type 2 Diabetes

Ginger Vieira

November 22, 2025

Ginger Vieira

November 24, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Diabetech Founder Justin Eastzer Simplifies Diabetes Technology with Humor and Heart

Erin Poche

November 17, 2025

Erin Poche

November 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

The Hidden Consequences of Being Misdiagnosed with Type 1 Diabetes

Tara Mayo

November 8, 2025

Tara Mayo

November 7, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

She Knew It Was Type 1 Diabetes: No One Would Listen

Ginger Vieira

November 3, 2025

Ginger Vieira

November 3, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Type 3c Diabetes: How Ric Peralta Turned a Rare Diagnosis Into Advocacy and Awareness

Kelly Dawes

October 25, 2025

Kelly Dawes

November 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed, Determined, and Moving Forward: Matthew’s Story

Julia Flaherty

October 12, 2025

Julia Flaherty

October 10, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

They Said It Was Gestational Diabetes — But They Were Wrong

Ginger Vieira

September 13, 2025

Ginger Vieira

September 15, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lisa’s Story: Healing Her Relationship with Food After Finally Receiving the Correct Diagnosis

Julia Flaherty

September 6, 2025

Julia Flaherty

September 8, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Six Years of “You’re Fine”: Jamie’s Long Journey to a Type 1 Diabetes Diagnosis

Ginger Vieira

August 23, 2025

Ginger Vieira

August 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed for Years: Gary Rind’s Journey from Type 2 to Type 1 Diabetes

Ginger Vieira

August 17, 2025

Ginger Vieira

August 18, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Kennedy’s Type 1 Diabetes Journey and Her Lifesaving Alert Dog, Kona

Erin Poche

August 4, 2025

Erin Poche

August 7, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Golfer with Type 1 Diabetes, J.J. Spaun, Wins U.S. Open

Julia Flaherty

August 2, 2025

Julia Flaherty

August 1, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

This Isn’t the Diabetes They Told Me I Had

Tara Mayo

July 13, 2025

Tara Mayo

July 14, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Meet T1D Author and Health Coach, Mark Brezzell

Erin Poche

July 5, 2025

Erin Poche

July 14, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Three Years. Two Pregnancies. One Missed Diagnosis.

Tara Mayo

June 22, 2025

Tara Mayo

June 23, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Meet Kelly Dawes, Advocate and Founder of Grownup T1Ds

Erin Poche

June 16, 2025

Erin Poche

June 23, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed: Danielle’s Fight to Protect Her Daughter

Julia Flaherty

June 1, 2025

Julia Flaherty

May 30, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Matthew’s Road to Answers: How Life Challenges Led to the Right Diagnosis

Julia Flaherty

May 4, 2025

Julia Flaherty

May 5, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed: A New Mother Fights for the Right Diabetes Diagnosis

Tara Mayo

April 21, 2025

Tara Mayo

April 23, 2025

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The Diagnosis That Wasn’t: Mark’s 28-Year Journey to the Truth

Tara Mayo

April 13, 2025

Tara Mayo

April 11, 2025

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Eric Van Leeuwen’s Journey: From Misdiagnosis to Advocacy

Tara Mayo

April 5, 2025

Tara Mayo

April 4, 2025

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Two Sisters with T1D: Still One Misdiagnosed

Tara Mayo

March 22, 2025

Tara Mayo

March 24, 2025

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Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

Tara Mayo

March 16, 2025

Tara Mayo

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

Ginger Vieira

March 1, 2025

Ginger Vieira

March 21, 2025

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Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

Ginger Vieira

February 22, 2025

Ginger Vieira

March 21, 2025

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Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Tara Mayo

February 17, 2025

Tara Mayo

March 21, 2025

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Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Tara Mayo

February 16, 2025

Tara Mayo

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Tara Mayo

February 1, 2025

Tara Mayo

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Ginger Vieira

January 26, 2025

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Nearly Fatal Misdiagnosis with Type 2 Diabetes

Ginger Vieira

January 20, 2025

Ginger Vieira

March 25, 2025

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Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Ginger Vieira

December 30, 2024

Ginger Vieira

March 25, 2025

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Actor, Author and Advocate Reneé Rayles

Erin Poche

December 23, 2024

Erin Poche

March 25, 2025

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Lydie’s Type 2 Misdiagnosis Story

Ginger Vieira

December 22, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Ginger Vieira

December 16, 2024

Ginger Vieira

March 25, 2025

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Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

Ginger Vieira

October 26, 2024

Ginger Vieira

March 25, 2025

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Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

Ginger Vieira

October 19, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Ginger Vieira

October 14, 2024

Ginger Vieira

March 25, 2025

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DiabeticU: An All-in-One Diabetes Health Platform

Erin Poche

October 13, 2024

Erin Poche

March 25, 2025

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A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Ginger Vieira

September 23, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Ginger Vieira

September 9, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

T’ara’s T2D Misdiagnosis Story

Ginger Vieira

August 26, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Ginger Vieira

August 5, 2024

Ginger Vieira

March 26, 2025

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Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Ginger Vieira

August 3, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Type 1 Diabetes Testing

Erin Poche

May 3, 2024

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosis of Type 1 and Type 2 Diabetes

Laura Rogers

April 17, 2024

Laura Rogers

March 1, 2025

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Adult Onset Type 1 Diabetes: What You Need to Know

Erin Poche

April 7, 2024

Erin Poche

March 1, 2025

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Why is Type 1 Diabetes Not Being Diagnosed?

Laura Rogers

March 27, 2024

Laura Rogers

March 1, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

Erin Poche

January 30, 2024

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Erin Poche

December 14, 2023

Erin Poche

March 27, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

Erin Poche

December 8, 2023

Erin Poche

March 27, 2025

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How Searching For Answers Changed One Man’s T1D Journey

Over 40% of adults with type 1 diabetes (T1D) over the age of 30 are initially diagnosed with type 2 diabetes (T2D). For John Boyce, that statistic became personal.

T1D Team

June 8, 2026

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It’s Not the End of the World: Zinnia Wijsman’s Journey With Type 1 Diabetes in Ghana

At 17, Zinnia Wijsman was always thirsty, always drinking water, and a relative noticed it was not normal. There was diabetes in the family, so they did not ignore it. What followed was not just a diagnosis, but a chain of events that would shake her confidence, test her body, and eventually reshape her life in ways she could not have imagined.

Lucía Feito Allonca

June 6, 2026

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Misdiagnosed and Delayed: Asra Ahmed on a Lifetime with Type 1 Diabetes

Asra Ahmed’s story is a powerful reminder of why early detection and accurate diagnosis in type 1 diabetes (T1D) matter so deeply. Diagnosed 38 years ago after an unexpected blood test during her university placement, she faced confusion from the very beginning, including misdiagnosis, delayed treatment, and a lack of clear education about her condition.

Lucía Feito Allonca

May 24, 2026

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Early Detection of Type 1 Diabetes: Mom Uses T1D Scout to Screen Her Children at Home

T1D mom Hannah Bragg uses an at-home test kit to screen her three sons for type 1 diabetes (T1D). Here, she discusses why she chose to screen, how she felt about the results, how simple the process was and why she believes early detection matters.

Erin Poche

March 30, 2026

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From Diagnosis to Global Leadership: A Conversation with Kyle J. Rose

Living with type 1 diabetes since childhood, Kyle J. Rose has turned personal experience into a career with global impact. Today, he serves as Global Vice President of the International Diabetes Federation, following decades of experience in the medical technology sector. He has woven his lived experience together with those of thousands of others to guide organizations of all sizes in product development, expanding access to medicines and technology, and building meaningful partnerships.

Erin Poche

March 2, 2026

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Laughing to Keep from Dying: Phyllisa Deroze’s Advocacy for the Black Diabetes Community

February is Black History Month, a time to honor the achievements and contributions of the Black communities around the world. It is a moment to recognize stories that are too often overlooked, especially in healthcare. One such story belongs to Phyllisa Deroze, whose journey with type 1 diabetes highlights how culture, advocacy, and community can transform care.

Lucía Feito Allonca

March 1, 2026

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James Elliott’s Story—and Why His Voice Led Us to Co-Found Voices in Action

James Elliott, president and founder of Voices in Action: People Living with Diabetes in Global Health, shares how community support, game-changing tech, breaking stigmas, and early detection save lives.

Lucía Feito Allonca

January 5, 2026

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When the Signs Don’t Add Up: Misdiagnosed at 60

Misdiagnosis doesn’t only happen to children or young adults. Many older adults develop type 1 diabetes (T1D), yet their symptoms are often waved away or misread. This is the story of Åsa Carlsson of Dalsland, Sweden, who lived for years with symptoms no one could explain. Her path to the right diagnosis shows what happens when something feels wrong, but the healthcare system insists everything is fine.

Julia Flaherty

December 14, 2025

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The Impact of Sylvie Maalouf’s Missed Diagnosis on Global Diabetes Care

Sylvie Maalouf turned a deeply personal challenge, a missed diabetes diagnosis, into a mission that reaches across the globe. Like an alchemist who turns pain and hardship into light and clarity, Sylvie has the gift of infusing every word and every note of her voice with magic, filling the air with hope and wonder.

Lucía Feito Allonca

December 1, 2025

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Misdiagnosed for 14 Years with Gestational Diabetes & Type 2 Diabetes

Katie Albers knew something wasn’t right. Her doctor told her she had gestational diabetes during her first pregnancy in 2008. She had no idea that the diagnosis would turn into a 14-year medical mystery.

Ginger Vieira

November 22, 2025

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Diabetech Founder Justin Eastzer Simplifies Diabetes Technology with Humor and Heart

Known for making complicated technology easy to understand, Justin Eastzer’s life took an unexpected turn at age 30 with a life-changing diabetes diagnosis. Today, he uses his gift for simplifying technology to educate and empower the diabetes community.

Erin Poche

November 17, 2025

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The Hidden Consequences of Being Misdiagnosed with Type 1 Diabetes

When type 1 diabetes (T1D) or latent autoimmune diabetes in adults (LADA) is mistaken for type 2 diabetes (T2D), the consequences go far beyond the wrong medication. A misdiagnosis can trigger a cascade of physical complications, deep emotional wounds, and harmful behaviors, all while delaying the care a person urgently needs. For many, it’s not just a medical error. It’s a life-altering experience.

Tara Mayo

November 8, 2025

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She Knew It Was Type 1 Diabetes: No One Would Listen

By the time Katie Van Dyk was finally diagnosed with type 1 diabetes (T1D), she had already spent nearly a year trying to convince her doctors that something wasn’t right. She wasn’t a stranger to self-advocacy. As an attorney, she’s trained to ask questions, look for evidence, and build a case based on facts. But when her blood sugar spiked during her first pregnancy, every fact she presented and the questions she asked were brushed aside.

Ginger Vieira

November 3, 2025

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Type 3c Diabetes: How Ric Peralta Turned a Rare Diagnosis Into Advocacy and Awareness

Type 3c diabetes, also called pancreatogenic diabetes, is a rare form of diabetes caused by damage to the pancreas and is often misdiagnosed as type 2. For optician, consultant, and Healthy Sight Ambassador Ric Peralta, the diagnosis came suddenly after a medical crisis in 2003.

Kelly Dawes

October 25, 2025

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Misdiagnosed, Determined, and Moving Forward: Matthew’s Story

When Matthew Rehrig opened his gym in 2015, he was in his mid-twenties and living his dream. He coached every session, handled sales, cleaned the floors, and kept the lights on—literally and figuratively. He was newly married, a new dad, and driven by a purpose to help people get healthier and stronger.

Julia Flaherty

October 12, 2025

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They Said It Was Gestational Diabetes — But They Were Wrong

For many people, a diagnosis of type 1 diabetes is an abrupt turning point in life. For Dr. Claudia Maltby, it was life-changing both personally and professionally.

Ginger Vieira

September 13, 2025

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Lisa’s Story: Healing Her Relationship with Food After Finally Receiving the Correct Diagnosis

Today, Lisa Cerezo celebrates her achievement of maintaining healthy blood sugar levels within her target range. She is giving her body what it truly needs, but her journey didn't start off this way. Lisa began in a place of constant frustration due to a misdiagnosis that could have led to serious long-term health issues.

Julia Flaherty

September 6, 2025

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Six Years of “You’re Fine”: Jamie’s Long Journey to a Type 1 Diabetes Diagnosis

At 68, Jamie is living with resilience, humor, and fierce determination—qualities that helped her survive both breast cancer and a six-year misdiagnosis of type 2 diabetes.

Ginger Vieira

August 23, 2025

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Misdiagnosed for Years: Gary Rind’s Journey from Type 2 to Type 1 Diabetes

At 65, newly retired from a long career in finance and accounting, Gary Rind now leads a full life in Houston, Texas, traveling internationally, actively managing his diabetes, and meeting monthly with his local type 1 diabetes group. But his journey to this point wasn’t always easy.

Ginger Vieira

August 17, 2025

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Kennedy’s Type 1 Diabetes Journey and Her Lifesaving Alert Dog, Kona

The Berce family gained an incredible gift the year before their daughter, Kennedy, was diagnosed with type 1 diabetes. They didn’t know it at the time, but the Portuguese water pup they adopted would become a lifesaving alert dog.

Erin Poche

August 4, 2025

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Golfer with Type 1 Diabetes, J.J. Spaun, Wins U.S. Open

J.J. Spaun, a professional golfer living with type 1 diabetes, won the 2025 U.S. Open title, but his victory was not easy to come by. In 2018, Spaun was misdiagnosed with type 2 diabetes, and for several years, his health and game declined. After seeking a second opinion and receiving the correct T1D diagnosis, he began his comeback.

Julia Flaherty

August 2, 2025

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This Isn’t the Diabetes They Told Me I Had

In her mid-40s, Lynna Demay was the picture of health. She followed a strict vegan diet inspired by Dr. Joel Fuhrman’s Eat to Live, exercised daily, and felt stronger than ever. So when her A1C came back at 14.1 % and her blood sugar was over 300 mg/dL during a routine physical, she was stunned.

Tara Mayo

July 13, 2025

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Meet T1D Author and Health Coach, Mark Brezzell

Author Mark Brezzell shares his ‘Unexpected Journey’ with diabetes and how it inspired him to become a speaker and diabetes educator. After being misdiagnosed with type 2 diabetes, he now urges those newly diagnosed to ask questions, seek second opinions, and prioritize self-education.

Erin Poche

July 5, 2025

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Three Years. Two Pregnancies. One Missed Diagnosis.

Elisha was 26 and pregnant with her first child when she failed her oral glucose tolerance test (OGTT) and was diagnosed with gestational diabetes. She experienced the same high glucose levels during her second pregnancy. After more than three years of being told she had gestational or T2D, Elisha finally had the correct diagnosis: type one diabetes.

Tara Mayo

June 22, 2025

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Meet Kelly Dawes, Advocate and Founder of Grownup T1Ds

Kelly Dawes, a dedicated leader in the type 1 diabetes (T1D) community, has lived with the condition for 44 years. Her personal journey instilled in her a deep sense of empathy and a passion for supporting others. As the founder of the nonprofit organization, Grownup T1Ds, she offers vital resources that foster connection, reminding T1Ds they’re never alone in their experience.

Erin Poche

June 16, 2025

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Misdiagnosed: Danielle’s Fight to Protect Her Daughter

Danielle was diagnosed with diabetes during her junior year of college in 2009. Upon admission to the hospital, her A1C level measured 12.6%—equivalent to a dangerously high blood glucose level of 1,036 mg/dL. Based on this, the attending endocrinologist diagnosed her with type 2 diabetes (T2D). Years later, when Danielle’s daughter began showing similar symptoms, Danielle’s experience empowered her to advocate swiftly for immediate evaluation and treatment.

Julia Flaherty

June 1, 2025

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Matthew’s Road to Answers: How Life Challenges Led to the Right Diagnosis

Matthew Roze was misdiagnosed with type 2 diabetes (T2D) at 38 years old in 2021. It wasn’t until 2023, however, that he was diagnosed correctly.

Julia Flaherty

May 4, 2025

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Misdiagnosed: A New Mother Fights for the Right Diabetes Diagnosis

Morganne Linthwaite was 34 years old when she was finally diagnosed with type 1 diabetes (T1D) — after years of being misdiagnosed, dismissed, and forced to advocate for herself.

Tara Mayo

April 21, 2025

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The Diagnosis That Wasn’t: Mark’s 28-Year Journey to the Truth

When Mark was first diagnosed with type 1 diabetes (T1D) at 35 years old, he wasn’t even told what type of diabetes he had. But he was immediately started on insulin — both rapid-acting and long-acting — and sent home from the hospital with the message: “You’re going to have this for the rest of your life, and it’s only going to get worse.”

Tara Mayo

April 13, 2025

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Eric Van Leeuwen’s Journey: From Misdiagnosis to Advocacy

Eric Van Leeuwen was 29 years old when he received a life-changing phone call from his doctor. Until that moment, he hadn’t given much thought to his health. He felt fine — or at least, he thought he did. But in reality, his body had been sending him warning signs for months. The only reason he even went to the doctor was because his wife insisted he get a routine physical. That appointment led to unexpected bloodwork results that would forever change his life.

Tara Mayo

April 5, 2025

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Two Sisters with T1D: Still One Misdiagnosed

‍For three years, Justine lived with the wrong diagnosis. Despite having textbook symptoms of type 1 diabetes and a sister with T1D, she was told it was type 2, handed a prescription, and sent on her way. It took years of relentless advocacy, a sister’s support, and a nonprofit stepping in to finally get the right answers. But why did it take so long?

Tara Mayo

March 22, 2025

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Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

For years, Zorya did everything in her power to manage what doctors told her was type 2 diabetes — only to discover it wasn’t type 2 at all. It was type 1. This is her story of frustration, self-advocacy, and ultimately, finding the right diagnosis.

Tara Mayo

March 16, 2025

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Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

In the summer of 2014, Nazak Malekan, a data analyst and translator from Montreal, received news that would change her life. At 42 years old, she was diagnosed with type 2 diabetes. Unfortunately, it would take five years of advocating for herself to get the correct diagnosis: type 1 diabetes (T1D).

Ginger Vieira

March 1, 2025

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Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

At 42 years old, Lua has spent nearly half her life navigating the challenges of diabetes. But for seven long years, she was misdiagnosed with type 2 diabetes. The journey to the correct diagnosis was filled with medical confusion, frustration, struggle, and unwavering determination.

Ginger Vieira

February 22, 2025

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Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Performing on a Broadway stage is no small feat, requiring a blend of stamina, precision, and passion. For Kyle Banks, the founder of KylerCares, managing type 1 diabetes compounded the challenge—a condition that has become part of his story both on and off the stage.

Tara Mayo

February 17, 2025

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Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Kerry was misdiagnosed with type 2 diabetes at 31 years old. Her story is one of perseverance, resilience, and determination to bring joy back into her life—even in the face of a chronic illness.

Tara Mayo

February 16, 2025

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Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Megan's journey with diabetes began during her first pregnancy at 18 years old. What started as a standard glucose tolerance test quickly became a life-changing (and frustrating) experience.

Tara Mayo

February 1, 2025

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Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Anna Nicolaou was misdiagnosed with gestational diabetes at 27 years old during her first pregnancy. She was misdiagnosed at age 30 during her second pregnancy and misdiagnosed again at 33 years old during her third pregnancy.

Ginger Vieira

January 26, 2025

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Nearly Fatal Misdiagnosis with Type 2 Diabetes

Steven Thompson’s A1c was 15 percent when he was misdiagnosed at 26 years old in 1991.This means his blood sugar levels were over 400 mg/dL every day.

Ginger Vieira

January 20, 2025

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Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Rebecca Dugas was misdiagnosed with type 2 diabetes in her mid-30s. Since then, she’s been through a lot—ER visits, side effects of type 2 drugs, and the consequences of diabetes denial.

Ginger Vieira

December 30, 2024

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Actor, Author and Advocate Reneé Rayles

Reneé Rayles, a leader in the T1D community, created the popular platform “Hey Type 1 Diabetes” to empower and support T1D individuals. Here, she shares her passion for diabetes education and transparency, her misdiagnosis with T2D, and her advocacy efforts to make insulin affordable for all.

Erin Poche

December 23, 2024

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Lydie’s Type 2 Misdiagnosis Story

In 2023, Lydie Pincemin was misdiagnosed with type 2 diabetes at 45 years old. Recent studies suggest that up to 40% of adults over 30 with type 1 diabetes are initially misdiagnosed as type 2 cases. Understanding that a T1D diagnosis can occur at any age is vital to receiving life-saving treatment.

Ginger Vieira

December 22, 2024

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‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Trapper Haskins, musician, author and woodworker, was misdiagnosed with type 2 diabetes at 36 years old in 2013. He endured seven years of frustration with extreme exercise and severely restrictive diets trying to reverse type 2 diabetes (T2D) before he received an accurate diagnosis.

Ginger Vieira

December 16, 2024

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Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

At 43 years old, Ana Alvarez Pagola was misdiagnosed with type 2 diabetes while living in Argentina. Now, nearly 20 years later, Ana still remembers the year of confusion quite clearly.

Ginger Vieira

October 26, 2024

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Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

In 2009, Mona Verma was misdiagnosed with type 2 diabetes at 36 years old in Toronto, Canada. By the time she was diagnosed correctly with type 1 diabetes in 2020 during the COVID-19 pandemic, she had endured a decade of very high blood sugar levels.‍

Ginger Vieira

October 19, 2024

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‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Griet De Schaepmeester was misdiagnosed with type 2 diabetes at 45 years old in 2024 — and this misdiagnosis wreaked havoc on her entire life for months. ‍

Ginger Vieira

October 14, 2024

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DiabeticU: An All-in-One Diabetes Health Platform

When Matthew Tremellen was diagnosed with type 2 diabetes at 47, he struggled to find essential resources to improve his condition. After failing to uncover an all-encompassing tool that assists with meal planning, exercise, carb counting, and inspiring tips, he decided to build his own—DiabeticU.

Erin Poche

October 13, 2024

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A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Stepping around a doctor isn’t an easy decision for a nurse practitioner or diabetes educator. A nurse isn’t supposed to question a doctor’s diagnosis. Fortunately for a young man in Illinois, a diabetes educator found the courage and strategy to work around a stubborn doctor’s misdiagnosis.

Ginger Vieira

September 23, 2024

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Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Robert Coombs was 27 years old when he was misdiagnosed with type 2 diabetes in 2007. Unfortunately, this diagnosis led directly to the misdiagnosis of a second condition. Both misdiagnoses are largely the result of new and experienced doctors making assumptions in the face of undiagnosed medical conditions.‍

Ginger Vieira

September 9, 2024

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T’ara’s T2D Misdiagnosis Story

At 25 years old, T’ara Smith was misdiagnosed with type 2 diabetes. She had an A1c of 15% and felt increasingly lousy for months before she went to her primary care doctor.

Ginger Vieira

August 26, 2024

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Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Even the rich and famous can be misdiagnosed with type 2 diabetes when they actually have type 1! Lance Bass — the 90s boyband pop star from N’Sync — recently shared that he’s been diagnosed with type 1 diabetes at 45 years old. A few years ago, though, he was diagnosed with type 2 diabetes after a bout with COVID-19.

Ginger Vieira

August 5, 2024

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Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Emily Trantum was misdiagnosed twice. When Emily’s doctor first diagnosed her with prediabetes in 2011, she wasn’t exactly surprised. Several of her older family members had type 2 diabetes, including a grandparent, aunt, and uncle on her mother’s side. But the confusing part was this: Emily was only 24 years old. ‍

Ginger Vieira

August 3, 2024

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Type 1 Diabetes Testing

Diabetes mellitus—a chronic disease that occurs when the body can’t produce enough insulin to support the cells for energy—has many associated types and tests. With more than 133 million Americans living with diabetes and more cases escalating every day, it’s essential to differentiate between the various forms, assessments, and treatment plans for each.

Erin Poche

May 3, 2024

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Misdiagnosis of Type 1 and Type 2 Diabetes

Just as some children with type 1 diabetes are incorrectly assessed with the flu or some other viral infection, recent studies indicated that up to 40% of adults with type 1 diabetes are misdiagnosed with type 2 diabetes. These dangerous miscalculations and insufficient testing may lead to hospitalization with severe diabetic ketoacidosis, diabetic coma and even death.

Laura Rogers

April 17, 2024

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Adult Onset Type 1 Diabetes: What You Need to Know

There is a growing prevalence of adult onset T1D diabetes cases worldwide. As the autoimmune disorder (diabetes type 1) was often found in children and young adolescents, misdiagnosis of type 2 diabetes is often common in adults.

Erin Poche

April 7, 2024

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Why is Type 1 Diabetes Not Being Diagnosed?

Contrary to popular belief, type 1 diabetes does not happen exclusively during childhood. In fact, almost 50% of type 1 diabetes diagnosis arises in adulthood. Data from the UK Biobank shows that more than 40% of type 1 diabetes occurs after age 30 and that many patients are often initially diagnosed with type 2 diabetes.

Laura Rogers

March 27, 2024

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DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

After a type 2 diabetes (T2D) misdiagnosis at age 55, Peter Friedfeld underwent two years of mismanagement and hardship until he finally received the correct diagnosis as a type 1 adult. The Lancet reports that up to 40% of adults might be misdiagnosed with type 2.

Erin Poche

January 30, 2024

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Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Battling the misperceptions of type 1 diabetes is another challenge T1Ds encounter. People of all ages, races, sizes, ethnicities, and lifestyles can have type 1 diabetes. Most importantly, the lack of awareness in emergency rooms around the country has led to dangerous misdiagnoses among T1Ds.

Erin Poche

December 14, 2023

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Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

The world needs trailblazers. Risk takers who see a problem and find a solution. Their vision takes existing ideas to new levels and empowers others to follow. The diabetes community is fortunate to have Amy Tenderich, DiabetesMine founder, who has used her experience to educate, open doors and elevate a needed change in diabetes healthcare and technology.

Erin Poche

December 8, 2023

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Actor, Author and Advocate Reneé Rayles

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‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

DiabeticU: An All-in-One Diabetes Health Platform

A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

T’ara’s T2D Misdiagnosis Story

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Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Type 1 Diabetes Testing

Misdiagnosis of Type 1 and Type 2 Diabetes

Adult Onset Type 1 Diabetes: What You Need to Know

Why is Type 1 Diabetes Not Being Diagnosed?

DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

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